HUNTER SYNDROME RESOURCES GET INSPIRED AND GET PRACTICAL

Everything in Its Place—The Benefits of Life Well‑Organized

9 min read

Kimberly and Steven faced many challenges after getting their son’s diagnosis. Little did Steven know he would find comfort while navigating one of them.

Tagged in: Parenthood, Caregiver, Medical information, Staying organized


Boys playing trombone and clarinet in a band

Connected, Not Isolated

9 min read

Zayd has learned many lessons along his journey, and he’s sharing them with us today. Take a look at 5 practical tips inspired by his experience. We hope you find them useful!

Tagged in: Vulnerability, Self-discovery, Community & relationships, Problem solving


How We Helped Justin Belong

9 min read

Kimberly and Steven share the wisdom they’ve gained while building a supportive community for their son living with Hunter syndrome. Take a look at 5 practical tips inspired by their experience.

Tagged in: Community & relationships, Parenthood, Problem solving, Caregiver

More inspiration IS on the way

Visit us often to find new resources and stories we hope you’ll find useful and inspiring.

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