Welcome to My Life With Hunter Syndrome, a place where you can read stories from people living with this condition. Get inspired, be moved, and come back often for more.

Keep in mind that Hunter syndrome affects everyone differently. These stories do not reflect all the possible experiences that someone may have with this condition. Also remember that your healthcare team will always be your best source of information.

More inspiration IS on the way

Visit us often to find new resources and stories we hope you’ll find useful and inspiring.

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